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SCI CONNECTOR September 2004

SCI ANNUAL PICNIC LARGEST TURNOUT EVER

About one hundred people attended the annual SCI Network 2004 picnic, held August 28th at Adventist Rehab Hospital of Maryland, in Rockville. The day was hot and humid, but Adventist Director of Marketing, Susanna Jones, made a large air-conditioned space available to the hot and hungry crowd. Included in the well fed bunch were about twenty-five staff and patients.

SCI Network board members and volunteers cooked chicken, dogs, burgers, beans, potato salad and lots of other goodies for our guests. One of the high points of the afternoon this year was the sixth annual presentation of the Jane McIntosh Award. Jane was an early and outstanding disability advocate, past president and a founding member of the SCI Network. Jane’s son, Michael Driscoll endowed the award seven year’s ago and presented it again (upper left) this year.

The award is made yearly to the company, group or individual deemed most supportive of SCI Network and its community. This year’s winner is Jesse J. Parker. Jesse, recently nominated to the board of directors, took on the leadership role in our first golf marathon fund-raiser, which took in nearly $20,000 in pledges. He is also our newest board member.

Elections were held for board and officers. Five door prizes were awarded, and then the grand prizewinner of the 24th Annual Redskins Season Ticket Raffle was chosen buy a young volunteer in the crowd. The winner was longtime Network member Charles Gubish, of Arlington, Virginia. Chuck has been a Network supporter and a participant in the raffle for at least the past fifteen years.

NETWORK'S TEAM COHOSTS WHEELCHAIR BASKET BALL AT AMERICA UNIVERSITY

The SCI Network and Adventist Rehabilitation Hospital of Maryland (formally Kessler-Adventist) in Rockville, Maryland, and the Adventist Rolling Knights will host a thirteen team wheelchair basketball tournament at American University’s Bender Arena on Saturday & Sunday, October 9th and 10th. American University is located at 4400 Massachusetts Avenue NW, in Washington, DC. Teams from New York, Delaware, Pennsylvania, Virginia, Washington, DC, and Maryland will be represented.

The Adventist Rolling Kights, SCI Network’s team, will participate. There will eight D3 teams and five D2 teams in the tournament. The Invitational Tournament is sponsored by Adventist Rehabilitation Hospital of Maryland, National Spinal Cord Injury Association, and Spinal Cord Injury Network. Registration for the tournament has begun. Tournament sponsors, teams wishing to enter, volunteers, and anyone looking for further information are encouraged to call 301-424-8335, or click on the comment button at the bottom of this or any page.

You need not have an SCI/D to play basketball. Many amputees, for instance, play wheelchair basketball. If you would like to know more about wheelchair basketball or about joining the Rlling Knights, or if you are interested in sponsoring or supporting the Rolling Knights, please visit our website at www.spinalcordinjury.net, or call 301-424-8335

A LETTER FROM MARCIE ROTH, CEO NSCIA

Dear Friends:

On behalf of the NSCIA and our research partner, the National Rehabilitation Hospital-Center for Health and Disability Research (NRH-CHDR), I would like to invite individuals with spinal cord injuries (SCI) to take part in a national survey on Physical Activity, Exercise, and Secondary Conditions in People with SCI. The survey is part of a Rehabilitation Research and Training Center (RRTC) on SCI: Promoting Health and Preventing Complications through Exercise. This RRTC is funded by the National Institute on Disability and Rehabilitation Research (NIDRR) which is a part of the US Department of Education. As a collaborator, the NSCIA has been involved in the various research and training activities of this RRTC.

We are involved so we can help people with SCI to maximize the quality of their lives. We believe that projects like this will help make life better, easier, and more fun for people with SCI. Although the literature indicates that there are more than 200,000 people living with SCI in the United States, less than half report that they exercise or engage in physical activity. It is unclear if a lack of physical activity or exercise is associated with increased risks of other health-related problems, such as heart disease, urinary tract infections, and bone loss.

The purpose of this survey is to therefore study the relationship between physical activity and exercise and the health of people with SCI. If you or someone you know has a spinal cord injury and is interested in taking part in this survey, please contact: Matt Kehn, E-mail: matthew.e.kehn@medstar.net, phone: (202) 877-1603, toll-free: 1-866-380-4344. If you are eligible, he will send you a consent form and the survey. You will be asked to fill out this mail survey once a year over two years. All the information you provide will remain strictly confidential. As the Executive Director of NSCIA, I have been impressed with your responsiveness to such requests in the past.

The future health of people with SCI depends on our growing knowledge. I know that your contribution to this important research project will make a difference. Sharing your experiences will help us better understand how exercise and physical activity can benefit people with SCI. Without the input of people with SCI, all we are doing is guessing. With your help, we can learn from the experts.

Sincerely,

Marcie Roth, Executive Director NSCIA


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